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Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts

7/15/2018

Hoist The Freak Flag!


This thing that I'm about to tell you may sound extremely odd. OK, here goes. Lately, I have been worried about my freak flag. Let me explain what that means. A freak flag is a symbol for a person's level of weirdness. Everyone is a bit weird and, usually, a person's freakishness is visible to others by their flag. Brave people let them fly high up in the air. Like colorful birds, they tell the world that they are flamboyant, unique beings. The higher it goes, the farther you will see it. Hah, space even!

OK, so, in regards to my own freak flag: I think it has been in hiding ever since I had my first kid. Especially having a special needs child, I felt it was time to tuck it in. The thing is, I was afraid that people would link my boy's condition to me, and somehow look for an easy answer to why he is the way he is. I'd rather let them judge and diagnose him by an objective standard. Don't get me wrong, I think it's quite normal trying to figure out why a person is tuned a certain way, and looking at the parents for clues is one of the first things we do. Personalities vary though. My boy is odd. He's very unique. I am too. But while I'm quite shy and introverted, he's the opposite of that. Unlike him, never in a million years would you see me throwing a tantrum in public.

He's suspected of being on the verge of the autism spectrum, but, as things are progressing right now, it could still be a delay in his general development. There currently is no diagnosis that exactly fits his condition. Since most of his problems are centered around speech and social abilities, that area is where his oddity is most visible to others.

So in trying not to be at the center of blame, I made an effort to be less suspicious. I even got accustomed to talking to people. Yes, people. This may not sound like a big deal to the major part of the population, but it is to me. I'm not much of a conversationalist. Small talk makes my palms sweaty. Remembering names and faces and details to me is like playing Sudoku. Once I get it, and I know someone, I'm OK, but it's hard getting used to it. So, when my first kid was born, like all parents, I knew I had to let the world in a little. Talking to other parents, moms, professionals, doctors. And while I got a little bit of practice in doing so on a regular basis, I still feel uncomfortable at times. I think in trying to hide the freak flag, it has become even more elbowing. Because nothing is more odd to people than talking to someone who tries to hide a freak flag. It's like trying to hide a speech impairment by not talking. It's super freaking weird. And that's what I think has happened.

I should have known that overcompensating for my inner freak would not create "normal" behavior. Sometimes over-compensation works that way, with minor flaws it certainly does, but not with a whole personality. So in my quest to appear normal and together to the outside world, I forgot about my own well-being. I got a lot of stomach trouble. Now I want to go back to the old me, at least meet her halfway between crazy town and where I live now. That old me was a super creative, sensitive person who would look at her world through matted glass. I want to be her again. I am her. Freak flag, get out from under there. You're all sad and crinkled. Get up there. Fly.








To be continued!

12/17/2016

Autism And Other Minor Concerns

As human beings we worry a lot. We don't seem to ever stop. We worry about our health, our safety, money, sometimes even stupider stuff, like which car to drive in our thirties, which meals to eat on a Sunday. If a burglar may kill us in our sleep, or if cancer will do the job during the light of day.

As parents, we worry about our kids, if they get enough sleep, if they eat enough of everything, if their poop's consistency is to our liking, if they experience enough of anything. These are somewhat understandable parental worries.

So, I, newly a mother of two, have been asking myself: am I doing a good job mother-wise. It's highly questionable, I will ever get an answer other than the one I can provide myself. Something scary has been going on, and it has been going on for quite a while. We have been concerned about our son's speech development for a few months. It hasn't progressed normally, even along the normal parameters for boys (expected to being slower than girls), he is far behind. At two years, kids should be able to produce 50 to 200 words, they should be able to understand up to 400 words. Plus they should be able to do such things as look a person in the eye, and, not resort to screaming when having to perform certain tasks asked to do by other persons than the immediate family.

Well, you, what can I say. Our boy didn't do well in any of said tasks. Until recently, he didn't say a single word, he didn't interact socially with people outside the family, and he didn't perform to the pediatrician's satisfaction. The result of this was an under-average performance in the developmental test, and the pediatrician telling me that judging by his behavior, my son may be in the autism spectrum. All I could say was, yes, well, OK. I didn't add the classic retort "That is yoooour opinion!" and "I'll get another opinion, you!" . No, I didn't. My reflexes were a bit off that day.




I tried to find flaws in their test, the whole setup. I couldn't. It is a standardized test, with the same conditions for everyone, so the results are representative for his age group. I then alleged a conspiracy. Doctors being greedy money makers who want to sell you stuff and services. Maybe they are. Still, they couldn't sell you anything if there wasn't a kid in need of those services.

I was next in line. It's me. Too much iPad, too little parenting. We jokingly call the iPad parental unit c in this house, just to give you a little grasp of its importance. So, it had to be me. Either something I did wrong or something my crummy genes did wrong to cause that in my boy. As it turns out, my genes are rather likely to cause that kind of disorder. Not gluten or the iPad. At least I think they don't. As it turns out we know so little about autism, or the brain in general, that there's plenty of room for all kinds of crazy theories.

"If he has it, it's all my fault, OK?" hubby said to me, while we were driving in the car. Hubby's so sweet. "I mean look at me, the way I am." Awww, my sweet little Asperger! I replied that we're both a couple of odd people with some variance of social strangeness. So in my mind, it has to be a rather explosive coming together of crummy genes. Romantic, if you think about it. We combined our flawed gene pools and what came out was an even bigger water, a big muddy sea of crummyness. Awwww!

And that changed my perspective. Yes, we're both old and horrible but we created something genuinely unique. Not saying that special always means good or easy. But no matter how this turns out, if it really is autism, some other disease or nothing at all, our boy is extraordinary, the way his brain is clocked, the way he sees and assesses objects, people, concepts. I like to watch him watch the world and it's fascinating and endearing. And that is something to be happy about rather than sad or worried. He'll be an interesting human being no matter how this plays out. It won't always be easy for him to find his place in the world. But in this world, there should be a place for interesting, off-beat, difficult and lovable.